yes folks the Walk 4 Brain Cancer is this Sunday 13 Nov https://walk4braincancer.com.au/walks/canberra/
Our team that is you guys have been conspicuous in our fundraising overachievement!! and there may be a chance that I get interviewed and share some of my story of which you guys are a huge part. It’s hard to express how thankful I am to have such a great cheer squad who I know are there for me no matter what is taking place in my slightly dysfunctional bits and pieces!
I shouldn’t be too hard on myself even my neurologist is now surprised at the fact I have enough movement in my left foot to transfer to a chair or even get into car or to the toilet from chair/bed let alone negotiate stairs into and out of house the toe drag is still frightening though and while to be celebrated actually being out of chair and moving, I am freak’n the whole time. in short, it’s just bloody scary. But folks a bit of news for you. Life wasn’t meant to be easy, so deal with it draper as Christine reminds me! and she is right, there are no free rides so don’t expect one and you’ll be a better person for it! it’ll lead to this awesome character trait called resillience… I have managed to get a few milestones in which is keeping me pretty stoked. William has handed in his assessments for uni, Zac had his 19th Birthday and is in his own final mile leading to end of school. Even better is that Zac has created a number of pathways from school into full time work and follow on qualifications that Christine and I know will have him set for life. Work aside. what matters most is that both boys hit the mark in our view of the universal #1 human trait of just being a decent human and no it wasn’t luck it’s been a labor of love (read: consistent hard work from the time they popped into our lives in just a few weeks they’ll both graduate. It was all I’d hoped for at diagnosis. which none of my treating docs would commit to. So grateful I am to be here to see it! You see how I did that? failing body shit outlook (prognosis) and a wheelchair, and yet I know there are good and positive things that surround me I just need to look for them! Are your eyes open enough to see your own awesome?
In more good news I am close to a wheelchair assessment to help with the back pain and lock-ups I have been experiencing because as you know
Zac has been my driver alot these last few months, thxs mate!
i don’t like drugs so loading on panadol even shits me I want the cause treated not throw more chemicals at the issue
I am trying to help around the house though!!
In other what is trashed in bullet’s body bingo this week…. my leg and arm are vibrating and doing their own thing with increasing regularity. it’s no less disconcerting but just another thing to be aware of! the sensitivity of my left side is getting orse. and slightest cold touch is excruciating I also now have a habit of hitting my face on door frame as I am moving into the bathroom. I haven’t bruised yet which I consider lucky… the left sensory issue also affecting mouth now and even eating weet bix with cold milk and fruit this morning was a bit painful. seriously can’t win a trick! but it’s food so I worked through it!!
Please send me your walk pics and I will try to pop them up!!
I am slowing up my weeks a bit due to getting tired easy…. like at 0730 I can easily go back to bed now for a few hours. yep makes me great company for the family….
Christine got me out to the last weeks Brain Tumor Support group meeting run by BTAA it was nice to see everyone. There was a new family there, who are three weeks post surgery, and with him a similar age to me. it just makes you ask again WTF why so cruel. prime of life everything to live for. but as above. not everyone gets the golden eilly wonka ticket to life. sometimes life is just not easy so we just need to show up each day and be your best you. my advice stick with it. you never know your real strength until tested!
Christine’s three boys in the one place for a change!!
It’s been great to have William down a few times now the thesis is handed in.
stay awesome, look for the good/positive everywhere, and hug your fam bam
bullet